In the Media

  • Canzano: Here’s hoping the Trail Blazers make it rain

    William is only 3. He’s into robots, dinosaurs and building things really tall. He’s in preschool, meeting all his milestones and progressing normally. His best friend is a little girl named Kirby.

  • Nonprofit starts fundraiser to help people with rare diseases

    News segment by KGW

  • Willpower

    To spread positivity and give back to the community, Portland State Athletics will be choosing a cause to champion each month this fall. September's cause is near and dear to all of us as we support a fellow Viking and Duchenne.

Blog

Sit Skiing, Snacks, & Spring Break on the Slopes

The precious gift of a rare disease diagnosis

When Your Best Friend’s Son gets a Duchenne diagnosis…

From Theory to Reality: a Grandparent’s Perspective on a DMD Diagnosis