In the Media
Canzano: Here’s hoping the Trail Blazers make it rain
William is only 3. He’s into robots, dinosaurs and building things really tall. He’s in preschool, meeting all his milestones and progressing normally. His best friend is a little girl named Kirby.
I’m telling you this because William Jackson needs your help today.
Also because one life should always matter.
Nonprofit starts fundraiser to help people with rare diseases
News segment by KGW
To spread positivity and give back to the community, Portland State Athletics will be choosing a cause to champion each month this fall. September's cause is near and dear to all of us as we support a fellow Viking and Duchenne.
Willpower
Blog
From Theory to Reality: a Grandparent’s Perspective on a DMD Diagnosis
Grandchildren, particularly this one, are one of life’s special gifts and the conflicting emotions of great joy and profound sorrow are difficult to reconcile.
When Your Best Friend’s Son gets a Duchenne diagnosis…
Will took my breath away from the second I saw him. “He has dimples!” I shrieked at the video of Will, just a few hours old…
The precious gift of a rare disease diagnosis
The first year after our son’s Duchenne diagnosis was difficult, confusing, and frustrating.
Sit Skiing, Snacks, & Spring Break on the Slopes
For us, being outside is important. It is healing, calming and all around one of our very favorite things to do as a family.