runDisney
Thank you for helping us meet our fundraising goals. It truly takes a community to get this work done and we appreciate you taking this step for us and all families living with rare disease. We are on the verge of HUGE medical breakthroughs, for William and all people living within the rare disease community.
You are a part of that, how exciting!!
Hello Everyone!
I have some exciting news. I just signed up to Run for William, a sweet 6 year old boy I know living with Duchenne Muscular Dystrophy.
Duchenne is a rare and devastating genetic disorder that affects boys, resulting in muscle wasting and loss of mobility. Boys with Duchenne rarely live into their late twenties. Heartbreaking.
I’m proud to be part of his community, along side his family, who continues to hustle to raise funds for his treatment, much of which isn't covered by insurance.
A non-profit named Cure Rare Disease is working with his family on a unique clinical trial where each patient gets their own custom treatment using CRISPR gene editing technology. A team of researchers is working to formulate William’s individual treatment, and they are at a critical stage of research and development, but funding this research is very expensive.
To learn more about William you can visit wewillforwilliam.org.
Can you help me raise $ for his treatment this year? Here is the link to my page [insert link to your page] and thank you for helping William!
Running for William,
[your name]
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Below you will find some photos of the process, some photos of William you can use for your fundraiser, as well as some blurbs helping describe what we are doing and how it is moving this work forward.
Ask always, please reach out to Kati with any questions or help with verbiage.
OTHER TEXT EXAMPLES
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One
For my birthday this year, I am raising money for a sweet friend of mine, William, who is 3 and fighting for a cure for Duchenne Muscular Dystrophy. His family is working with a team of amazing researchers at Cure Rare Disease who are development life changing treatments for boys living with Duchenne.
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Two
These funds are going to fund the science behind customized gene therapies for William others living with Duchenne. Why is custom important? Because in William’s case, there are no other boys living with his same mutation that we know of. Finding a solution for his mutation (duplication of exon’s 12-20) will treat him and him alone.
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Three
Duchenne Muscular Dystrophy is a muscle wasting disease that affects mostly boys. William is among about 250,000 boys living with this disease in the US today. There is no cure and it is 100% fatal. But…there is hope. Scientists are working hard to unlock a treatment that could prolong lives by decades using CRISPR technology. This is the research you are helping fund by donating today. There is hope for William and you can be a part of it.
