Social Media Birthday Fundraisers
Thank you for helping us meet our fundraising goals. It truly takes a community to get this work done and we appreciate you taking this step for us and all families living with rare disease. We are on the verge of HUGE medical breakthroughs, for William and all people living within the rare disease community.
You are a part of that, how exciting!!
To begin a Facebook fundraiser, log into Facebook from a computer, and select “Fundraisers” (with the pink heart icon) from the left selection menu. You may have to click “see more” in order to see display it.
From “Fundraisers”, select “Raise money for you, a friend or business”. This will allow you to link your bank account and direct the funds specifically to Will’s CRD account after your fundraiser is complete. Transfers via cash, check, Venmo, paypal or direct donation to William’s page on Cure Rare Disease are all acceptable.
On the “Select a category” page, click ‘Medical’ and you will be taken to a page where you can edit all the details of the fundraiser on the left side of the screen, including the category, title, reason, amount etc. When you’re ready to post, click the ‘Create’ button. The fundraiser then goes to Facebook for review, this process takes 1-2 days before it’s approved and active.
After Facebook completes its review, ‘Facebook Fundraiser Help’ will message you and direct you to enter your banking information. This step must be completed from a computer, not a phone.
Below you will find some photos of the process, some photos of William you can use for your fundraiser, as well as some blurbs helping describe what we are doing and how it is moving this work forward.
Ask always, please reach out to Kati with any questions or help with verbiage.
EXAMPLE TEMPLATES
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One
For my birthday this year, I am raising money for a sweet friend of mine, William, who is 3 and fighting for a cure for Duchenne Muscular Dystrophy. His family is working with a team of amazing researchers at Cure Rare Disease who are development life changing treatments for boys living with Duchenne.
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Two
These funds are going to fund the science behind customized gene therapies for William others living with Duchenne. Why is custom important? Because in William’s case, there are no other boys living with his same mutation that we know of. Finding a solution for his mutation (duplication of exon’s 12-20) will treat him and him alone.
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Three
Duchenne Muscular Dystrophy is a muscle wasting disease that affects mostly boys. William is among about 250,000 boys living with this disease in the US today. There is no cure and it is 100% fatal. But…there is hope. Scientists are working hard to unlock a treatment that could prolong lives by decades using CRISPR technology. This is the research you are helping fund by donating today. There is hope for William and you can be a part of it.
